International Research Institutions
The Whittemore Peterson Institute
Based in Nevada in the USA, the Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
The goals of the Whittemore Peterson Institute include:
To facilitate and advance patient care; Research the pathophysiology of neuro-immune diseases such as ME/CFS, fibromyalgia, atypical MS, and autism;Develop therapeutics, diagnostics and prevention strategies for this spectrum of diseases; and To advance and support medical education and physician training.
The spectrum of neuro-immune diseases including: Myalgic Encephalomyelitis (ME/CFS), Atypical MS, Fibromyalgia and Gulf War Syndrome share common abnormalities in the innate immune response, which result in chronic immune activation and immune deficiency.
A study by the Whittemore Peterson Institute in 2009 detected the retroviral infection XMRV in greater than 95% of the more than 200 ME/CFS, Fibromylagia and atypical MS patients tested. The current working hypothesis is that XMRV infection of B, T, NK and other cells of the innate immune response causes chronic inflammation and immune deficiency resulting in an inability to mount an effective immune response to opportunistic infections
For more information about the Institute, click here.
The European Society for ME (ESME)
The European Society for ME, or 'ESME', is a 'think tank' of top scientists from relevant fields who discuss current ME knowledge in order to determine the most crucial direction of future research, and to provide a reliable source of cutting-edge ME information that ESME will incorporate in the education of medical professionals.
ESME will encourage research leading to the accumulation of new knowledge and to a better understanding of the disease, and will endeavour to raise funding for biomedical research in, and education about, ME/CFS.
News
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Dr. Byron Hyde in Australia
Dr. Byron Hyde will be visiting Australia in September 2010 to make presentations on ME and CFS in …
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XMRV virus and related virus 'MLV' confirmed in CFS
Researchers have found murine leukemia viruses (MLV) related gene sequences in blood samples …
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'Exploring ME/CFS' on ABC national radio, 'Nightlife' with Tony Delroy, Aug 23
'Exploring ME/CFS' was the topic of a national radio interview on Tony Delroy's ABC 'Nightlife' …
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As many as 180,000 Australians are directly affected by ME/CFS
Research
Research into ME/CFS is occuring across the globe. Follow the links below for research resources.
Alison Hunter Memorial Foundation
Australian Research Institutions
International Research Institutions
Support Organisations by State
ME/CFS Australia directs enquiries from members of the community about frontline support for people with ME/CFS to independently run state organisations.
Resources
Nutrition and ME/CFS: Download a PDF, available in the following languages:
Chinese(717 kb)Croatian(880 kb)Dutch(680 kb)French(740 kb)German(865 kb)Greek(821 kb)Italian(735 kb)Spanish(679 kb)Vietnamese(741 kb)
