News
10 May 2013
Help raise awareness. Here are some ways.
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08 May 2013
Could mitochondrial dysfunction be a differentiating marker between Chronic Fatigue Syndrome and Fibromyalgia? Read here.
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12 April 2013
Daily cytokine fluctuations, driven by leptin, are associated with fatigue severity in chronic fatigue syndrome: evidence of inflammatory pathology A small pilot study of 10. Read here.
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10 April 2013
Are B-Cells to Blame for Chronic Fatigue Syndrome? Read here.
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21 March 2013
Severe M.E. 55 reasons why people with Very Severe ME cannot access health care. Read here.
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15 March 2013
Lyme Disease reporting in USA : A possible government Act Requiring The Department Of Public Health To Report On Lyme Disease And Other Tick-Borne Illnesses USA- Middletown. Read here.
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13 March 2013
NIH Awards Nearly $2 Million to NYC Institutions to Close the Scientific Gap in Chronic Fatigue Syndrome Research. Read here.
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07 March 2013
Role of the Toll Like Receptor (TLR) Radical Cycle in Chronic Inflammation: Possible Treatments Targeting the TLR4 Pathway. Read here.
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26 February 2013
'Drug Development for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME and CFS)'. Read here.
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20 February 2013
YouTube video: Episode 41- MECFS Alert Interview with ME/CFS expert international clinician and researcher, Dr John Chia. Dr John Chia is an infectious disease expert. Watch here.
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08 February 2013
Newlyweds, Hayden & Josie have decided to make a donation on behalf of their 100+ wedding guests to support people living with ME/CFS. Read Hayden and Josie's message to their guests here.
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07 February 2013
A brilliant line up of internationally acclaimed experts and researchers talking about a range of neuro-immune conditions including ME/CFS / Gulf War, it is inspiring and will give people much hope.
View videos from the conference here.
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06 February 2013
ME/CFS Australia wishes to congratulate Dr. Nancy Klimas and her team on their new institute for treating neuroimmune illnesses such as ME, CFS, FM, & GWI etc.
The Institute will also be the first in the USA to study neuroinflammatory and neurodegenerative disorders such as CFS/ME, GWI, Parkinson’s Disease and multiple sclerosis using the newest genomic techniques. Read here.
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31 January 2013
JPT Peptide Technologies and The Institute for Medical Immunology at the Charite in Berlin Announce Collaboration on Chronic Fatigue Syndrome. Read here.
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23 January 2013
ME/CFS Australia (Vic, Tas, NT) runs self-management courses for people and carers with ME/CFS and Fibromyalgia over seven x 1 hour sessions in person or by telephone link.
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22 January 2013
'Advanced topics in Lyme Disease. Diagnostic hints and treatment guidelines for Lyme and other tick borne illnesses' Sixteenth Edition, Joseph J. Burrascano Jr. M.D
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21 January 2013
US National Conference to Discuss Chronic Fatigue Syndrome
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18 January 2013
'Cerebral vascular control is associated with skeletal muscle ph in chronic fatigue syndrome patients both at rest and during dynamic stimulation' Read here.
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21 December 2012
Best selling author Lauren Hillenbrand confronts Chronic Fatigue syndrome by writing stories that inspire.
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12 December 2012
Reduced heart rate variability predicts cognitive disturbances, such as concentration difficulties commonly reported by people with and ME/CFS. This adds to the growing body of evidence linking autonomic nervous system imbalance to symptoms of this poorly understood disorder. Original Source.
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03 December 2012
Chronic Fatigue Syndrome (CFS) and Cancer Related Fatigue (CRF): two “fatigue” syndromes with overlapping symptoms and possibly related aetiologies. Read here.
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28 November 2012
ME Research UK has joined forces with Action for MEthe ME Association and a private donor to fund the UK’s first biobank of human blood samples for research into the causes of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Read more here.
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27 November 2012
Targeting mitochondrial dysfunction in the treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a clinical audit. Read here.
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19 November 2012
Cassandra Leigh is taking part in ‘Point to Pinnacle’ to raise funds to support people living with ME/CFS. Cassandra has set her fundraising target at $7000. The funds generated from Cassandra’s efforts will go specifically to conduct professional education sessions to teachers in schools across Tasmania.
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07 November 2012
Young people with chronic fatigue syndrome or myalgic encephalopathy (CFS/ME) experience higher levels of psychological distress than healthy controls and young people with other chronic illnesses. Read more here.
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01 November 2012
Gulf War Syndrome new Australian Investigation" Submissions Sought by 5 April 2013. NOTICE OF INVESTIGATION 22/10/2012
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25 October 2012
View the discussions, medical and advocacy presentations and recommendations via Youtube.
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22 October 2012
The latest most comprehensive guidelines for medical practitioners for Myalgic Encephalomyelitis. This concensus document is by a large team of ME medical and research experts, it provides round breaking international perspective. Based upon the diagnosis and treament of over 50,000 patients with ME, peer reviewed publications and a collective of over 500 years of experience. Download a copy for free and make sure all your health and medical practitioenrs have a copy.
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22 October 2012
At the October 3 - 4 federal Chronic Fatigue Syndrome Advisory Committee meeting, Assistant Secretary for Health Howard Koh acknowledged that President Barack Obama's staff will now monitor the Department of Health and Human Services activities in relation to myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS).
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10 October 2012
Video- Seminar on ME/CFS, Stockholm 11 September 2012.
Professor Christopher R. Snell, Pacific Fatigue Laboratory, California, USA
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08 October 2012
On September 11, Swedish ME patient organisation RME Stockholm hosted a conference featuring several ME/CFS researchers including Chris Snell and Profs. Mella and Fluge. The conference lineup is listed below. Following is a press release by RME.
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28 September 2012
Search for the aetiology of ME/CFS. Development of a rational diagnostic system based on microbiological biomarkers. Read here.
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25 September 2012
Australian Chronic Fatigue Syndrome Research Lab Making Waves: Pt I
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20 September 2012
UK Medical Research Council notice for 1.65 million pounds ringfenced for CFS/Myalgic Encephalomyelitis (CFS/ME) –research funding for high quality proposals
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07 September 2012
25% of people with ME will remain bedbound or highly housebound. A brilliant depiction of true ME.
30 August 2012
Latest Internationally accepted criteria for diagnosing ME, 2011.
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29 August 2012
YouTube video. Watch here.
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28 August 2012
Can the Australian NHMRC follow this lead by the UK for high quality ‘biomedical’ research into ME/CFS?
Read here
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20 August 2012
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16 August 2012
The Chronic Fatigue Syndrome Advisory Committee US Department of Health and Human Services.
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02 August 2012
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24 July 2012
Inflammatory and Cell-Mediated Immune Biomarkers in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Depression: Inflammatory Markers Are Higher in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome than in Depression
Michael Maesa, Frank N.M. Twiskb, Karl Ringelc
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17 July 2012
One of the world's toughest physical sporting challenges will take place in November 2012.
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09 July 2012
Dr. Norman E. Booth, Dr. Sarah Myhill and Dr. John McLaren Howard are pleased to announce the publication of a second paper concerning the link between Mitochondrial dysfunction and ME/CFS. Read More.
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26 June 2012
A preliminary study has found a significant reduction of glutamine and ornithine in the blood of CFS samples. Read more.
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19 June 2012
Dr. Rosamund Vallings, ANZMES Conference Report of the 7th Invest in ME International ME/CFS Conference, 2012 London, England.
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08 June 2012
Edited by: Christopher R. Snell Feb 2012, 104 pages
28 May 2012
An article has been printed in this week's New Idea magazine on Rachel Klyve's 'Life's a Beach Walk'.
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25 May 2012
Written by Fibromyalgia medical and health experts from the MAYO clinic
Lesley M. Arnold, MD; Daniel J. Clauw, MD; L. Jean Dunegan, MD, JD; and Dennis C. Turk, PhD; for the FibroCollaborative
Click here for the original article source and to download a copy.
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18 May 2012
Visit 'Living with CFS & Fibromyalgia' website.
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11 May 2012
Project Information: Annual Report 2011 by Project Manager Dr Olav Mell. (Translated by Google)
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11 May 2012
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04 May 2012
Pulse wave abnormalities have been observed in CFS and represent a potential objective measure to help differentiate between CFS patients and healthy controls.
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03 May 2012
The Atlantic May 2, 2012
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27 April 2012
Australian researchers found no participant performed in a manner indicative of an intent to perform poorly These findings suggest that poor effort is unlikely to contribute to cognitive test performance of persons with CFS.
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10 April 2012
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02 April 2012
Talk by Professor Derek Pheby given to Solihull and South Birmingham ME Support Group September 2011.
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30 March 2012
Association- funded research will form a pipeline to effective treatment for CFS.
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30 March 2012
Patrick O. McGowan, Professor in the Department of Biological Sciences and Director of UTSC's Laboratory for Epigenetic Neuroscience, is looking at how environmentally triggered changes to gene expression might alter immune function and stress response in ways that contribute to the disease.
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30 March 2012
Researcher Dr Claire Hutchinson- Vision and Language Research Group, College of Medicine, Biological Sciences and Psychology, University of Leicester, Leicester, UK.
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26 March 2012
Rachel is walking 700kms from Byron Bay to Sydney to raise awareness and funds for ME/CFS Australia.
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23 March 2012
Author of ‘Severe ME/CFS: A Guide to Living’, Emily Collingridge who died in hospital on Sunday at the age of 30. had hardly lived- but she leaves a huge legacy.
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23 March 2012
Nerve gas, insecticide exposure possible cause of Gulf War illness, say GHSU researchers By Tom Corwin / Augusta Chronicle Staff Writer Monday, March 19, 2012 4:50 PM
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23 March 2012
Nice 21-minute video of interviews of teenagers with ME from NE England (from 2008).
20 March 2012
Dr. Kogelnik interviewed in MECFS Alert Episode 22 re Open Medicine Institute undertaking large trails with Rituximab and Ampligen.
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19 March 2012
Click read more to view this research article.
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19 March 2012
To view the article, please click Read More.
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03 January 2012
For people in rural areas with ME/CFS unable to access transport to medical care.
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18 July 2011
International IACFS/ME research & clinical conference for ME/CFS, FM & related illnesses. Ottawa, Canada - September 22-25, 2011. For details of academic program and speakers click here.
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18 May 2011
The recent identification of xenotropic murine leukemia virus-related virus (XMRV) in the blood of patients with chronic fatigue syndrome (CFS) establishes that a retrovirus may play a role in the pathology in this disease.
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11 May 2011
Commonwealth of Australia, House of Representatives Speech on the 11th May 2011 on Chronic Fatigue Syndrome by Mr. Lyons, the Member for Bass.
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10 May 2011
International ME/CFS Awareness Week 8-15 May 2011
Research suggests 180,000 Australians currently suffer from this chronic condition - but only 16% are diagnosed or receive treatment.
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09 May 2011
Events and activities to mark International ME/CFS Awareness Week are happening all over Australia. Click here for more information.
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14 April 2011
Host Llewelyn King featured a panel discussion of CFS on his PBS program "The White House Chronicle" that aired April 12, 2011.
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07 April 2011
This workshop brings together high calibre world expert ME/CFS researchers.
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07 April 2011
For nearly two decades following the 1991 Gulf War, doctors noticed a trend in many of veterans of that conflict: an unexplainable cluster of symptoms including but not limited to chronic fatigue, memory loss, and depression.
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05 April 2011
There has been substantial mystery surrounding the origins of Chronic Fatigue Syndrome (CFS), a condition affecting as many as four million Americans.
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30 March 2011
The Way Forward for ME - A Case for Clinical Trials
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30 March 2011
Health officials in British Columbia announced $2 million for a study and new centre that will focus on screening, diagnoses and treatment of patients with ME/chronic fatigue syndrome, fibromyalgia and Lyme disease.
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25 March 2011
A symposium at the New York Academy of Sciences on March 29 will reveal recent advances in the testing and screening of the blood supply, diagnose the current problems, and explore future efforts to maximize the safety of this vital resource.
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23 March 2011
Dr. Jose Montoya, Associate Professor of Medicine, Division of Infectious Diseases at Stanford University discusses CFS and current research regarding diagnosis and treatment and the possible CFS-infection connection.
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03 March 2011
ME/CFS Australia responds to The Lancet study from Feb 18 2001 that compared Adaptive Pacing Therapy, (APT), Cognitive Behavior Therapy (CBT), Graded Exercise Therapy (GET) and Specialist Medical Care (SMC) for ME/CFS.
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28 February 2011
A new study shows that spinal fluid can be used to detect proteins that help distinguish patients with Lyme disease from those with chronic fatigue syndrome.
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09 February 2011
Interview with Elaine Harris, from the Afternoon program on ABC Radio Northern Tasmania.
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21 January 2011
Nunez, M et al (2011) 'Health-related quality of life in patients with chronic fatigue syndrome: group cognitive behavioural therapy and graded exercise versus usual treatment. A randomised controlled trial with 1 year of follow-up', Clinical Rheumatology, [Epub ahead of print, Abstract, Jan 15].
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07 January 2011
In early December 2010 a rather unique scientific conference was held at Bond University in Queensland, Australia.
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07 January 2011
WPI response to recent proclamation that "XMRV is not the cause of CFS".
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10 December 2010
Some of the world\'s leading researchers in neuroscience and immunology have gathered on the Gold Coast for an international science symposium on chronic fatigue syndrome.
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01 October 2010
A study has identified possible links between CFS patients and the XMRV which is a similar human retrovirus to HIV.
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29 September 2010
Results of a recent study.
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22 September 2010
Bond University in collaboration with Alison Hunter Memorial Foundation is pleased to host an International Science Symposium for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in December 2010.
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16 September 2010
Joint Press Release and statement issued by two UK ME groups condemns trial involving children and the Lightning Process.
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10 September 2010
The results of a second American study into XMRV provide support for the involvement of murine retroviruses in CFS.
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10 September 2010
In addition to utilising broad based definitions of ME/CFS, White et al also utilise a further definition which excludes current psychiatric illness.
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09 September 2010
SCOTTISH scientists have found new evidence that the debilitating condition ME could by caused by a virus.
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26 August 2010
Researchers have found murine leukemia viruses (MLV) related gene sequences in blood samples collected from patients diagnosed with chronic fatigue syndrome.
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23 August 2010
'Exploring ME/CFS' was the topic of a national radio interview on Tony Delroy's ABC 'Nightlife' program on Monday August 23rd, from 10-11pm (Eastern Standard Time).
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11 August 2010
In this webinar, Louis M. Katz, MD will provide background about blood safety issues related to XMRV.
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09 August 2010
A plan to recruit children with ME/CCFS to a scientific trial of 'the Lightening Process' has been declared unethical.
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09 August 2010
A survey to ascertain the needs of carers is available through the Carers NSW website.
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05 August 2010
Crucial talks are under way to establish a world class research and treatment centre in Norwich, UK.
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04 August 2010
The original authors of the study that detected XMRV in the blood of CFS patients have issued an addendum to the original article.
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29 July 2010
Abstract from 12th International Conference On Malignancies In AIDS And Other Acquired Immunodeficiencies (ICMAOI) April 26-27, 2010, NIH Main Campus (US).
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28 July 2010
Join a group dedicated to harnessing the power of community, to create change in how ME/CFS is viewed, funded and treated.
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27 July 2010
The first international conference on XMRV will occur on September 7th and 8th at the National Institutes of Health in Bethesda, Maryland, USA.
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27 July 2010
The South Australian Department of Health recently produced the Multiple Chemical Sensitivity Hospital Guidelines adapted from the Royal Brisbane and Women’s Hospital MCS Guidelines.
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19 July 2010
During this program two experts spoke about the latest research into the association between XMRV, a newly discovered human retrovirus, and CFS.
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11 July 2010
A trailer for the new documentary 'What About Me?' aimed at shedding light on the disease ME/CFS is now available.
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01 July 2010
Maes and Twisk have written a ground breaking critique to substantiate why the Harvey and Wessely model for ME/CFS is incoherent and invalid, and why the label (bio) psychosocial model is inappropriate for ME/CFS.
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01 July 2010
A video from the American Urological Association's annual meeting discusses the link between XMRV, prostate cancer and ME/CFS.
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16 June 2010
The 5th International ME/CFS Conference 2010 took place on 24th May 2010 in London and was attended by presenters and delegates from 18 countries and four continents.
Information, photos, papers and the DVD from the Conference are now available through Invest in ME.
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27 April 2010
Australia's Red Cross Blood Service has reviewed its donation guidelines after Canada halted donations from people who have had chronic fatigue syndrome (CFS). Donations from people who have or have ever had a diagnosis of CFS have now been deferred in Australia.
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12 April 2010
Dr Byron Hyde has been instrumental in understanding the distinct difference between ME and CFS. Dr Hyde has been consulting with Canadian patients with ME/CFS for over 25 years.
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12 January 2010
ME/CFS Australia would like to encourage people with ME/CFS to take advantage of the Companion Card Scheme in their state or territory.
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10 January 2010
The mission of the European Society for ME or 'ESME' is to create a Think Tank where top scientists from relevant fields can discuss current ME knowledge in order to determine the most crucial direction of future research, and to provide a reliable source of cutting-edge ME information that ESME will incorporate in the education of medical professionals.
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31 December 1969
Disability Support pension Assessment Tables for Work Related Imparement
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News
Could mitochondrial dysfunction be a differentiating marker between Chronic Fatigue Syndrome and Fibromyalgia?
Daily cytokine fluctuations, driven by leptin, are associated with fatigue severity in chronic fatigue syndrome: evidence of inflammatory pathology A small pilot study of 10
Read more
Did you know?
As many as 180,000 Australians are directly affected by ME/CFS
Research
Research into ME/CFS is occuring across the globe. Follow the links below for research resources.
Alison Hunter Memorial Foundation
Australian Research Institutions
International Research Institutions
Support Organisations by State
ME/CFS Australia directs enquiries from members of the community about frontline support for people with ME/CFS to independently run state organisations.
Resources
Nutrition and ME/CFS: Download a PDF, available in the following languages:
Chinese(717 kb)Croatian(880 kb)Dutch(680 kb)French(740 kb)German(865 kb)Greek(821 kb)Italian(735 kb)Spanish(679 kb)Vietnamese(741 kb)